Standardized Assessments for the Management of Children with Motor Disorders
objective
Free distribution of detailed instructions on reliable and valid methods for the assessment of children with motor disorders. Assessments will include: The Hypertonia Assessment Tool (HAT), Modified Ashworth Scale (MAS), Tardieu Scale (TS), Observational Gait Scale (OGS), Goal Attainment Scale (GAS) and Physician Global Assessment (PGA).
background
During the course of conducting clinical drug trials for abobotulinumtoxinA (Dysport®) for FDA approval for an indication for upper and lower limb spasticity in children with cerebral palsy, a critical need of selecting and standardizing assessments across countries/facilities/investigators became a challenging imperative. The investigators spent years selecting tools, developing protocols, creating educational videos, testing and refining assessment methods, creating an App, and conducting training sessions to increase the reliability and validity of data. To enhance clinical care and research efforts, the investigators have proposed sharing these standardized protocols and training methods with health care providers across the globe.
assessments
Hypertonia Assessment Tool
A discriminative measure of the different types of hypertonia (i.e. spasticity, dystonia, and rigidity).
Modified Ashworth Scale
Measurement of hypertonia.
Tardieu Scale
Assessment of spasticity, defined as a velocity-dependent muscle resistance to stretch.
Goal Attainment Scale
Functional scale used to measure the extent of progress towards individual goals during the course of an intervention.
Observational Gait Scale
Visual rating of gait parameters from video recordings utilizing a structured scale.
Physician Global Assessment
Subjective overall measurement of treatment response based on achievement of treatment goals, change in impairment, limitations of activity, and restrictions in participation.
our team
Marcin Bonikowski, MD, PhD
Dr. Marcin Bonikowski is currently the Head of the Neuro - Rehabilitation Department of the Mazovian Neuropsychiatry Center...
Jorge Carranza-del Rio, MD
Dr. Jorge Carranza-del Rio is a specialist in pediatric and neurorehabilitation with a special interest in children with...
Nancy Clegg, PhD
Dr. Nancy Clegg is the Childhood Motor Disorders Research Coordinator at Texas Scottish Rite Hospital for Children...
Mauricio R. Delgado, MD
Dr. Mauricio R. Delgado is Professor of Neurology and Neurotherapeutics at The University of Texas Southwestern...
Nigar Dursun, MD
Dr. Nigar Dursun is a professor of Physical Medicine and Rehabilitation serving as a director in a connected setting of Medical...
R. J. Vermeulen, MD, PhD
Professor R.J. Vermeulen is head of the Child Neurology section of the Department of Neurology at the Maastricht University...
mission statement
To distribute detailed instructions on reliable, standardized and valid methods to measure impairments to enhance the assessment, treatment and management of children with motor disorders.